I know I have been lazy about posting on any sort of regular basis here.  I don't want to sound like I am whining or complaining all the time either so I have been struggling with the updates.  I think I am over that now.  So on with the show!

I had another follow-up with Dr. K last week.  I had a 2 week period where I felt "okay", which is a big improvement over feeling "like crap".  But it was short lived and left me frustrated.  Apparently this is a good thing and shows that we are on the right track with my treatment.  So on to the next step which is to take me off of the doxy and rocephin (which is given through an IV 2x per week) and put me on Flagyl to help break up the cysts.  We are also putting me on Diflucan (yay yeast - ugh) and have added a bunch of supplements to boost my immune system.  And they are the most foul things I have ever put on my tongue - ever.  Parsley sounds harmless until you have to ingest the concentrated oil (8 drops).  Fortunately for the others I can alternate internal and external.  I am still vitamin D deficient.  I have to stay out of the sun until I am done with the doxy/rocephin but in a few weeks I can get out there, maybe a beach day or 2 a week.

Overall, I feel less than mediocre and often need a full day each week to just lie in bed and nap, sometimes two.  I start a part time job tomorrow and hope that being somewhat productive will help the mental struggle of feeling useless.  I am looking forward to the next group of treatments and it has been rumored that I will have more weeks where I feel close to normal, and that they will increase in duration.  This idea keeps me focused and prevents me from giving up because honestly, feeling this run down all the time is not what I had planned on.