The good thing is my "feel good" periods are getting longer (by weeks), the bad thing is the "feel like death" periods still come back. I used to feel awful pretty much all the time, with a few hours or maybe a whole morning or afternoon scattered every once in a great while where I felt nearly fine. Now, having the "nearly normal" feeling for weeks on end I start to get used to it. And just when I forget how horrible I am able to feel it hits me. I find myself wanting to whimper in bed all day for the first few days. Then I remember I felt even worse previously and that this will pass.
This is progress so I have been told. It doesn't make it any easier physically but it does remind me not to give up and that there is hope. But in the meantime..ouch!!!!!!!
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