Monday, October 25, 2010

New information means new directions!

The ILADS conference was held a couple of weeks ago, and lots of new research and information was shared, and returned to me through Dr. K.  I am going on a new antibiotic and will be cycling through them more quickly.  Using low doses of doxy for long periods of time is no longer thought to be effective and new treatments are being prescribed to us Limeys.  There is still the idea of having a port or pic line installed and going that route if this new thinking doesn't prove to be effective with me.  I will probably be ordering up another Lyme test in a month or so as well to see where we are, and what is going on with the co-infections as there is new information on how to handle them too.
The past month has sucked.  I haven't been feeling well at all but have managed to put on a good face and smile as if I were doing okay.  But truthfully, all I want to do is sleep, nap and cry.  My right knee has been swelling up and is painful, especially after a day of being on my feet at work.  Dr. K feels it is probably the Lyme, but will order an MRI if I am still having issues with it after starting on the new antibiotics. Also, I have been experiencing extreme bouts of anxiety that have left me near paralyzed and fearful of leaving the apartment, though i am usually able to talk myself through them thanks to my training in psychology.  It doesn't make it any easier or go away any faster though.
I have called in to work an outrageous number of times, probably more in the past three months than in my total work life ever.  I am defeated by this and really hoped that it wouldn't effect my job as much as it has since I am only working three days a week.  I have been able to outsmart the system a little bit and avoided any reprimands, but should I need to call out in the next couple of months I will.  In about 3 weeks we will be in our busiest season, meaning I am going to have to be very cautious, or think on a medical leave of absence.  There has to be a happy medium in there somewhere.
After last week's follow up, and the tremendous amount of support, information and help that Dr. K has offered me (for a fee of course, but we can't work for free), I think it is about time for me to offer my help in supporting him in some manner......details to come.

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